For me the biggest adaptation was to actually start listening to my body and not ignore the headaches, the swelling or the general "ill" feeling. It wasn't about not being able to push through it but actually paying attention because those signs had a meaning. Then during dialysis, it was adjusting to the fatigue and letting people in. I was really hard on my boyfriend at the time (now my husband) because I didn't like how it felt for other people to see me be really sick.
I think time helped me adapt, as well as, surrounding myself with people who emphasized that putting yourself first and being vulnerable is not a bad thing. I needed the time to shift my mindset and let go of some expectations.
That's a great way to think. I've been on dialysis for a little over two years now and honestly I'm still in a fog mentally just trying to stay healthy enough and out of the hospital. If it's shortness of breath to fluid overload there's so much to keep track of including meds,appts,treatments,, transportation etc it takes a lot of my day to just function and thank god I love to cook I only weigh 130 lbs for over two years now and have kept it at that the entire time and thank you for sharing your journey with everyone may GOD BLESS YOU ALWAYS
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For me the biggest adaptation was to actually start listening to my body and not ignore the headaches, the swelling or the general "ill" feeling. It wasn't about not being able to push through it but actually paying attention because those signs had a meaning. Then during dialysis, it was adjusting to the fatigue and letting people in. I was really hard on my boyfriend at the time (now my husband) because I didn't like how it felt for other people to see me be really sick.
I think time helped me adapt, as well as, surrounding myself with people who emphasized that putting yourself first and being vulnerable is not a bad thing. I needed the time to shift my mindset and let go of some expectations.
That's a great way to think. I've been on dialysis for a little over two years now and honestly I'm still in a fog mentally just trying to stay healthy enough and out of the hospital. If it's shortness of breath to fluid overload there's so much to keep track of including meds,appts,treatments,, transportation etc it takes a lot of my day to just function and thank god I love to cook I only weigh 130 lbs for over two years now and have kept it at that the entire time and thank you for sharing your journey with everyone may GOD BLESS YOU ALWAYS